Hot off the press, studies from Australia have great great hope for BAricitinib. THis is a “medication” (anti-autoimmuneantibody) “drug” that aims to reverse early onset type 1 diabetes as well as I presume LADA.
What happens with type 1 diabetes is the body attacks itself and destroys the pancreas.
What happens with baricitinib is it stops that process.
This is really really great great news for anyone that is early in the process. And, we hope will point us in the right direction for somehow “reversing” damage in some cases. What is sad though is that fully blown type 1 is still likely a long way off being “cured” sadly.
But, this is hope and we are progressing faster than ever before.
Nothing, I repeat nothing I have ever ever done is as hard as parenting. Nothing even comes a sniff close to it.
Parenting is the challenge of my life.
Never have a felt more at sea, attempting to ride the most ridiculous surf out there as I have since birthing two girl children. Nothing ever prepared me for it and I believe there simply is no preparation.
Yes, it is indeed the delight of my life too.
But mostly it is hard hard work. Relentless and with very few breaks in the sets of waves that pound.
Two wills, two personalities, two sets of likes and dislikes. Two iron willed ladies.
One mom trying to work, mom, cook, teach, guide, model, passify, guide, did I say guide?
I believe I fail every single day. Every one.
Yes the joys too are incalculable.
And I would probably not swop it.
But, oh the fatigue I have is real.
My personal feeling is that two parents rising the ratio to 2 on 2 would really really help but my situation is not like that and I believe there are a lot of us singletons out there in the sea of waves. I am not complaining as such merely recognising that ideally a mom and a dad or at the least 2 present parents would be preferable in so many circumstance. Not even that my two dont have two parents I am more talking having them at the same time. It would ease things a tad. But probably it would still be the insurmountable challenge I experience it as.
I sit and wonder why I am so singularly poor at this challenge. Things that come to mind are : I am too hard on myself, I am wanting to be better and striving too hard, it would be easier 100 years ago, two strong wills is a tricky combination and adding my 3rd strong will makes it trickier still.
Anyway, I am hoping to learn to surf both in real life and in parenting and get the thrill of the ride as well as the occasional dump, rather than just being dumped as much as I am currently.
Where are we people ? As Suzelle – south africa’s brilliant voice on so many fronts might say. Where are we?
I kind of feel like I might be living in a pseudo universe right now. Not really sure what to make of reality and non-reality, and generally, it probably feels like that for many folk. This is a trying time whether you stand with Trump and guns in Michigan or Bolsonaro in Brazil eating his self-righteous sweet treats or Cyril in South africa walking the finest line between REALLY being there for HIS people both health wise and financially wise. Oh my lord where are we people? What is real and what is not.
There’s much I do not know. But let me tell you what I do know : the inflammatory cascade is a process that can happen triggered by multiple things including corona virus (there are other things that doctors learn long and hard about) and yes you all seem to be cleverly discovering this thing (out of context mind you) and propounding philosophy like there’s no tomorrow -which right now is a thing no-one is guaranteed of. Ventilators are not the only answer so to speak I agree, ICU care involves quite a lot more than just ventilating. And please help us God when the average man on the street “discovers” then next “medical revelation” and tries to “help” as a spouting fountain of knowledge, it will come, I doubt it not.
Suzelle generally sticks to DIY and expands it in a way that helps humanity almost always a value add.
People at large, let’s value add right now. What do YOU do? Do that and value add. Please, because YOU can people. Because you CAN.
If I had a wish from a genie, I would use it right now.
But I don’t. And for some reason collectively we are resisting what seems to be a truth that we are all battling to reconcile. This thing is here. It’s a terrible virus that has mutated from animal to human and it threatens US at large.
This is not an US and THEM situation it is only an US situation. Humans. Us.
Um, gulp, shit!!!
Against a corona viridae.
And yet, we CAN beat it. We really can. Ask Italy. Who have LOST soooo much.
However, we do need strategies. Now in South Africa we are blessed I believe to have had the experience of the HIV epidemic and the really hard lessons that it taught us. And we are now applying to a new pandemic.
Also we need honesty. More than ever. Not fear-mongering. Honesty and less gas-lighting.
We need community at a time when physically we are distanced. Yet spiritually we have a huge opportunity. For unity. For US. For humanity.
And actually to realise how connected each and everyone of us are. The truth.
Not US and them. Just US. And unless we collectively realise that, I fear worse.
As we hold our breath right now in south africa and some of the countries that have managed miraculously to flatten a curve FOR NOW, we need to realise this is a battle that is going to take a while. Many months, possibly years. And in order to continue to keep a flattish curve we need strategies. On many other fronts : hunger, fear, we need somehow very realistically to take hands, with all of those who are less fortunate.
So back to my genie, actually I may need 3 wishes at least, but failing genies and wishes, what can each one of US actually do? For humanity, for the future? There is sooo much YOU can do, so why not DO it, Like nike said, just DO it. Be part of the solution.
Loved the aladin movie (pic above) in it’s magic moments, we need more magic moments and the humblest of humanity are capable.
It is a great burden and a sadness that at this time during lockdown the “opportunity” for abuse in many ways is just too easy for the picking on the side of the abuser. To this end the “abused” in many many cases has very little access to “sanctuary”.
I was reading a great article last night and it resonated in so many ways in terms of making each one of us, individually and collectively at this point in time a little bit more “bullet proof” and “protected” in the midst of very little “protection”.
The “just” of it being 1.) recognise the “feelings” of : helplessness, anxiety, depression as SIGNALS that are screaming to us to do something. Not what society up to now has expounded that you are : weak, pathetic, not strong enough, rather that that feeling is a signal to YOU, precious one, that actually You can STAND up and even lying down YOU have a voice, a right, an access to bridging the gap between poor mental health and strong mental health.
2.) when one feels that one does not have “agency” ie things are all lost and nothing can get better, hopelessness in a sense, it is a very hard and terrifying place to be.
3.) That is why recognising the “vulnerability” for what it is is so vital and not giving that power. But stopping that vast chasm of no agency feeling in its tracks – and only the INDIVIDUAL in their MIND can do that.
4.) REcongnise that even in this time there are THINGS you can do, starting small. REaching out perhaps now is even a little easier as long as you have internet or a way to phone or even reach out to a neighbour. Take small positive steps.
5.) The resources for those who have access to them are literally endless on the internet.
6.) For those that don’t : start by getting “out of your mind” flick the switch by running around a chair or your house, reading a poem, literally thinking out of your normal box and grasping onto a positive thought, image or smell even.
7.) AVailbable too : most doctors are doing telephonic consults at this time as are psychologists and other health practioners, churches have pastors available on the other end of a phone, if needed the police are available and I would say if your situation requires it keep pressing on that button until you are indeed helped. The security “saints” independant security companies are very present right now and have been both kind and amazing during this time.
To my great shock I was accused of being “low class” yesterday. What does that mean buddy?
As far as I am aware it must hark back to the good old colonial british empire days? Like lady “downton abbey” and co looking down their royal blue blood noses at the “help”?
Yes I sound bitter. I am bitter. And I am reeling from a label that jerked the body inside the clothes.
Is this referring to a financial status? a way of behaving – like some bubblegum blowing teenager with a cockney accent? Even that in my opinion is a horrific “classification” of another PERSON.
Is is referring to a “bad” blood line with not enough “royalty” in it ? Or is it simply a person born badly by lineage who also has mannerisms (like farting) that do not FIT into “high” class society?
I am sorry, are we not in 2019? Did I miss a beat? Have women not got the vote largely in the world and even almost allowed to drive in saudia arabia?
Comments like that are what is wrong with society at large. Rather than celebrating “diversity” and “hybrid vigour” one chooses to spit and from such high ground and cause divisiveness.
Low-class : adjective : of low inferior standard, quality or a social class, cambridge dictionary adds -and the least money.
Pity you can’t take ” money” to the grave one day and that true love and joy do remain. The “richness” of being free to treat even a poor person with love and dignity is in my opinion high class. The attitude that one human is better than another is low class and sad really.
Funny how the world is upside for some. Luckily not for all.
Diversity is great and humans have greatness within them. Don’t let the bastards get you down.
Peter and John went to pray one day, they met an old man on the way ay ay, silver and gold have I none said he, but such as I have give I unto thee. Rise up and walk.
Yesterday I was privileged to listen to a sermon on this very encounter. The man in the story did not have faith for healing. He had faith for what he had encountered for many years -scraps. Scraps of money, time, affirmation, food.
And yet that day he was healed. Leaping and jumping and praising God.
So much of many of our lives are lived much like this. Hoping for scraps. And really that is not what we were destined for.
There is so much more.
We have a mindset sometimes that we lock into for years and years. And then all of a sudden sometimes the light breaks in. And we can see.
And there is a time of feasting.
Being lame is innate to my name, Claudius – the lame one. Wounded healer.
What an absolute joy and jump to be able to gift healing in the physical sense. And sometimes even the emotional.
But true healing is a much deeper process that requires divinity.
And the amazing thing is that it IS available. And also one does not have to be ok with scraps, now put that in your peace pipe and take a long hard inhale.
Claudius was a very interesting fellow, conquered Britannia – the UK basically. To sojourn from Rome to Britannia in those days was quite a sojourn.
My daughter of 5 and I listened to a sermon on sunday about essentially the power of words and the impact they can have on relationship reconciliation.
It is indeed profound to me at how she just got it : “I love you mommy” , ” I am sorry, please forgive me”. So easy for a 5 year old to snap and seemingly so impossible for older folk to get this simple simple concept.
The power of the spoken word is immense. As the preacher said God said of His own son : “this is my son whom I love”. If the God of the universe and of creations feels the need to speak such an obvious statement and was able to speak the universe into being how much more should we not speak out loud affirmation and love to our loved ones.
The sermon has literally come up at least 10 x since sunday in her little head and in such a positive way.
Words are tools- power tools. Most days I really underestimate them.
This morning I had a hospital patient in the little part of the world I live in called howick and then had to get kids to school. I had decided that I definitely was doing pilates this am not matter what and I did. Unfortunately I had no petrol in my car (well almost none). Made it to pilates. Left early to put petrol in and go and buy the food for my 5 year olds heritage day celebration. The shop I was hoping to buy fish pops from for mauritius – the country my little one chose, was closed. NO problem went next door to the trusty spar and got chicken pops instead -I am sure they eat these in mauritius too?
At the check out I had too much to carry so I said to the lovely teller – don’t you sometimes wish you had 3 hands – she said “even four, even four”.
I agree even four.
See here : above this pilates pic personifies the average mom, no none of us bar Julia Musgrave can do that but we try 🙂